 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | We had a recent similar poster who fits her profile (Jim B) who after hearing what we all had to say and talking to Dr Trotti at Moffitt, has decided to do the radiation which I think is a no brainer under these conditions. IMO she can't wait to see if it returns. She must be aggressive now because if it does come back it may be to late. She needs to get additional opinions and hopefully from a Comprehensive Cancer Center. See below: http://www.oralcancerfoundation.org/resources/cancer_centers.htm Her life may very well depend upon making the right decision now and she's already wasted to much time.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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