Hi there,

My husband was 28 when he was first diagnosed (small tumor on tongue, it was removed, well diff., clear margins). Classic timing - the tumor was found right before we had our second child - his surgery was the day after the baby was delivered and we were in the hospital together. First recurrence was about a year later in right nodes, 9 of 33 positive, radical neck dissection, cisplatin and radiation followed. One year later (as in - a few months ago) second, recurrence, left neck (6 cm tumor). He had carbo/taxol/Erbitux and radiation, and then surgery. Margins on surgery were clear and the tumor had shrunk to an amazing 4mm. He just got a peg tube. So here we are - a two and a half year old little boy, a five year old little boy, a three year old battle with cancer, and he is 31, and I am 30. HPV negative, never smoked ANYTHING ever, light drinker (a beer maybe every weekend or less).

Welcome to the site, and thanks for sharing your story! I hate knowing other people are going through this stuff, but it is nice to know we aren't alone.