laurenkuhly,
Wow, you have been thru alot. Do you have many lingering side effects from the Radiation/chemo?

I had just turned 25 when I was dx'd in 2001. I was a non-smoker and social drinker. HPV- It was definitely a lonely world back then as the only OC stuff on the web at the time was some very clinical documentation and a few case studies. Would've loved to have OCF as a resource the 1st time around. I know it was unreasonable, but back then I definitely felt akward in waiting rooms...I couldn't help imagining what the much older patients were thinking when they saw me walk into the room with my wristband on.


Age 33, NS, HPV-
8/01- At 25, SCC on tongue,3cm lesion remvd. L nk diss clr nodes
10/07- 2cm SCC remvd from L tongue
4/08- SCC on L tonsil,tonslctmy,2 wks later PET showed golf-ball szd tumor in tongue.
PEG.IMRT x 35 Cisplatin x 3 ended 7/08. Peg out feb 09 -Clear PET Dec 2010