I don't know if it is because they don't do the same thing in England, but we never got a CD? One time the consutant got an urgent call for sommeone on the ward (Martin is an out patient), and he left the file in the room. So I peeked and looked at all of the scans. But no one ever gave us a CD.
Otherwise, I have the consultants' and nurses' numbers in my mobile phone. I also have reminders in my mobile phone for appointments and scans, in case my trusted filfax gets lost. i also have a special martin folder with all of the copies of appointments and leaflets and stuff. it pays to be organised.
Best of luck as well.