I don't know if it is because they don't do the same thing in England, but we never got a CD? One time the consutant got an urgent call for sommeone on the ward (Martin is an out patient), and he left the file in the room. So I peeked and looked at all of the scans. But no one ever gave us a CD.
Otherwise, I have the consultants' and nurses' numbers in my mobile phone. I also have reminders in my mobile phone for appointments and scans, in case my trusted filfax gets lost. i also have a special martin folder with all of the copies of appointments and leaflets and stuff. it pays to be organised.
Best of luck as well.


Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear