When my mouth was really sore during treatment, I didn't use my trays because I had huge ulcers on the side of my tongue. I just brushed my teeth with the fluoride gel. I figured it was better than nothing. Also, I drank the regular vanilla Carnation Instant Breakfasts. When I was using my PEG I used 2calHN and tried drinking the stuff when I stopped using my PEG, and oh geez, that was nasty. I also couldn't stomach the boost and ensure, so I used the regular instant breakfasts (vanilla) from the grocery store for a couple weeks. I stopped using those eventually and started making my own smoothies with protein powder and now I can't stomach the thought of drinking another smoothie and even ice cream reminds me of them sometimes and kind of makes me want to gag!


Stephanie, 23, SCC on the right side of my tongue, surgery on 5-19-08, over half my tongue removed, free flap constructed from my forearm, bilateral neck dissection, one positive node. Radiation (32) and chemo (carboplatin) started on 6-16-08. Recurrence 4/09 in lungs.

**** Stephanie passed away 12.15.09.... RIP our dear friend****