"OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Hi Tamara, Welcome to this great forum which is really a family that you can turn to for the best advice from people who understand and have been or are going through what you are. As you can see I had surgery only (N0) and as mentioned you must get more professional opinions on your treatment options ASAP. Where were you treated in Sydney? Also sorry to hear you needed a 2nd flap and hope that this one has been successful.
Please let us know how you are going. Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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