Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hey folks, lets not scare our new guest, we don't know what her doctor knows! Tamara, Welcome. Since we all have a bit of passion about this disease, there are times when we might come across a little bit agressively. Please know that we will offer suggestions that you might consider based upon our observations of many many members here.
Congratulations on completing the first (and hopefully last) step to a cure for this. If you read through the forums here you'll find that perhaps the most difficult spot to be in is exactly where you are. Your cancer seems to have been caught early and that is good. The hard part is that you get a decision with regard to radiation (many of us did not have a choice). Radiation therapy is mean nasty stuff that I would not want to push anyone to get without a good reason. THE REALLY HARD PART is knowing when you should be saying yes to getting radiation therapy. You need very good input from the best resources you are able to get. (which you may already be getting) Even then you may feel like it is still a gamble.
To be sure, you may already be cured. This cancer, however, is one that likes to return if not fully treated. If it does return, often it is harder to treat. This is what everyone here is concerned about; that you stay amongst the rank of winners against this disease.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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