Hi Tamara,

Sorry you have had to deal with this horrid disease, you have certainly found a forum where there are many people who understand exactly what you are going through and will be able to help you with any questions you have or support that you may need.

Have you had more than one opinion regarding the need for radiation. If you haven't I would suggest that you go and get some more. I just don't understand why your doctor would not recommend radiation for the moment.

There are many other people your age who have had radiotherapy. I would question why they are not prepared to destroy it with everything now. Radiotherapy cleans up and kills any bits that may have been left after the tumour has been removed.

In my opinion getting another couple of opinions would be a very good idea.

Karen

Last edited by Karen Rose; 12-29-2008 06:43 PM. Reason: typo

46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery