Hi Tamara,

I'm sorry that you're here, especially at such a young age. I concur with the others that you should get another opinion. Have there been any discussions with a Radiation Oncologist? If not you might want to speak to your ENT about being referred to one for an opinion.

I have had radiation but my ENT said that it was only done because I had extracapsular spread from the affected lymph node. If it had not broken out of the node then I was given the impression that I could have avoided radiation and chemotherapy.

I guess it's possible that treatment regimes may differ here compared to the United States. Radiation certainly seems more prevalent as a standard treatment even in some N0 necks in the US than it is here. I'm from Melbourne by the way!

Good Luck,
Sue G


55 y/o
SCC LL Tongue 3/27/07
Part. mandibulectomy 9/2/07
Left ND 5/12/08
RT/Chemo
Rec LL Tongue 07/09
Part gloss 8/5 & 8/25
Surg 10/28/09 re mets to R neck & L jaw
RT & Chemo finished 12/22/09
PEG fitted 05/06/10
L buccal SCC 10/10
freeflap (forearm)surgery 2/28/11 L buccal and gingiva