Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Ruby, Im so happy to hear you have rounded up the troops to help you. I was very concerned about your situation. Its better to have too much help and not need it than try to find help and dont have any. Dont forget to call back the american cancer society (dont talk to the colon cancer woman) ask for rides and if you need help with prescription costs. Some meds are very expensive.
Ask the social worker for a home health aid or preferably a visiting nurse. Insurance covers this. With having a peg tube, most hospitals will send a visiting nurse to check on your peg tube to make sure no infections and that you are getting proper nutrition.
Hope your pet scan comes out with good results. Let your granddaughter come daily, you may need her or she may be able to help your husband. Right now you need to line up all the help you can get. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |