Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | It's still a long, slow climb -- Like the microwaved food, we keep on cooking for a while -- Coming in out of the sun is good, but that sunburn is still working -- It's a surprisingly long process, but one day you realize you've felt better for the last couple of days than in a long time and realize you really have crested the darn hill!
Don't expect miracles, slow and steady is how the course goes!
Since my recent surgery I'm back on a PEG with instructions not to swallow (barium swallow test this week, so hopefully that will change), so I don't carry water with me -- I feel kind of naked without it because I've had at least one water bottle with me for the last couple of years.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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