 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Don:
If you have questions about the PEG just ask. It took me a long time to get adjusted to mine. Finally the third formula I was given I could tolerate. Also there are 3 different feeding methods. Ask if you can get the feeding pump. I use it overnight, its very easy. It runs by itself and is slower than the other methods, so its easier to tolerate.
If you are still able to eat. Do it now, eat everything!!!!! Dont be concerned about gaining weight or calories, just eat. Do try for nutritious foods, not just a few bags of chips.
After you start treatments it could be a long time before food tastes like it should again.
Under FAQ there is a post of abbreviations that you will find helpful. Im not the best with them either. Dx is diagnosis, TX is treatment, IRMT is radiation, and the T?N??? is something with staging. If you have had a PET scan then your doc should be able to tell you the stage. The lower the number, the better.
Keep asking questions on here, you will get lots of help.
Good luck at 'school' tomorrow.
Christine
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
