| Platinum Member (300+ posts) Joined: Feb 2008 Posts: 341 | This is probably going to end up being a silly vent when I read back over it later, but I need to get it off my chest. I have bad cancer experiences - maternal grandmother lost her battle with brain cancer when I was a senior in high school - didn't understand any of the CG stuff my mom was going through at the time because I was a self-absorbed high school kid who lost her "nanny". Then later as I was an adult my mom lost her battle with breast cancer (mets to lung & brain). I shared CG with my dad and brother (we both closed our homes and moved home). Now I am CG to my husband. Alot of this stuff (from doctors terms, to info to this vent I remember experiencing with mom).
Well - cancer sux!!!! And treatment sux too - I know we are fighting and if we don't he will die. I'm cool with that and will do everything in my power to help him through this. But it's going to be hard - some days it'll probably seem like the treatment's going to kill him not the cancer. And we'll deal with those things as they occur. And we'll parent our children and run our business along with it.
Ok - enough background, etc. my complaint is people constantly saying it will be fine, you're never given more than you can handle, he'll probably be the one who can eat through the whole thing, it won't be as bad as you're thinking, you're researching too much, you're depressing yourself, dont' ask the doctors all those questions - they went to med school - not you, you can't be the "heroine".... These people love us in their own way, but they are not helping. And sometimes I need my fear and concerns validated and not hear "it's going to be fine". Anybody else deal with this as CG's?
Oh and the last item is a friend (20+ years) - thought we were the best of friends and like sisters as neither of us have a sister. She is married and has 3 children - she has basically disappeared - no help, no support, no phone calls, no e-mails... It breaks my heart - I guess she can't handle it and maybe it's the fear of it happening to her family. But man - it hurts!!!
Thanks for being here! I tell you what I am so blessed to have found you guys from the beginning!!
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO) Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer, TX IMRT 39x, cisplatin 7x (completed 5/1/08), PEG (4/22 - 7/9), No port. Currently in remission!
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