1. Keep your nutrition up...try to gain...because you will likely lose as you go forward.
2. Keep your calories up...use high calorie milks, juices and foods.
3. Get a jump on the pain and always be ready to move up the pain relief ladder as necessary.
4. Try to do normal things every day, like take a walk, until that gets to hard.
5. Then, just let your body dictate how much rest you need and go with that.
6. Ask questions when you have any uncertainty
7. Don't pack your pants with weighty items just to look like you didn't loose weight that week.
8. Don't let anyone poke you more than 2 times if you don't have a port. Demand an expert who knows how to work with chemo veins. (My husband got poked for an hour in the chemo lab...and, we didn't know we had options). When they got a qualified person in, they got the needle in with one poke. Oh, what a frustrating day. Or, the one we refer to as the day Dan was a human pin cushion.
9. Be sure you know what thrush is and be prepared to get a rx called in to a 24 hour pharmacy if you have one. The sooner you treat it the better as it can cause a great deal of pain during rt.

Let me know if this is helpful or if you are looking for more specific information.


Margaret
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C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.