Deb,

As I read over your post and the responses I want you to know first that your Dad really loves you and I know you love him. I also know that speaking strictly as a parent that sometimes our optimism prevents us from telling it all because we want things to be different; to be better before we tell. Unfortunately sometimes things don't get better and we have to face reality. Your father has had a few burdens of his own and none of this was done in any way to cause harm, discomfort, pain or suffering for you. As he battles for his life, his health, his recovery, he certainly is thinking constantly of his love for you. There may be times through this ordeal that his love for you is all that gets him to the next day.

Be thankful that today you have another day with him. Tell him how much you love him and thank him for loving you. People do what they do because they think what they do is the best course of action. I know there are exceptions but generally trust this. Nobody wants others to feel sorry for them or worry about the "what ifs" of life.

Your father is very fortunate that he has you and your love. Look beyond everything else and let your love shine through. There is nothing easy about this disease and your father has certainly not had anything easy for many years now. Clear your mind and bring nothing to him but kind and gentle thoughts when you deliver your abundant love for him to him.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023