Hello everyone, I didn't mean to upset anyone, and I'm sorry if I did. I was just frustrated! I have lost my voice and my electro larynx gets a little hard to use sometimes. Thank you all for your replies. I realized that everyone here is doing the best that you can to help people. If it takes a while to get help, that's fine too. All things will be revealed in thier good time. Well, I just got back from my oncologist. He said my PET scan was fine. No spots, but he says if I were his brother or father or himself, he would get the radiation. That hit me hard, he really believes. He also said that he would be radiating my neck not so much my jaw. I asked him about the radiating twice and he said it's rare but it does happen. He also said ORN was very unlikely. He came highly recommended. So, I am relieved about the PET but still a little freaked out about the radiation. I know you get sick of repling to the same old questions, but any advise would be nice. He offered to arrange a second oppinion. He said I might need Chemo if I get a surgical oncologist he might recommend it. I have a good friend that just believes in nutritional cures. It is alot to sort through. Thanks again, Tony


46 yr old-SCC TVC 9/06. Surgery - Radiation X30 - Last Tx Nov 29, 06 - never got voice back - Total Larygnectomy Jun 5,07/ X30 IMRT started Aug 9,07 - 2 Tx Cisplatin 21 days apart / Aug 15,07 to Sept 15,2007 I'm done with treatment!