Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Banker, I am two years out from rad and I still have a stiff jaw and a sore tongue at times (mostly I think from drymouth and rubbing against my teeth which have shifted around since rad). I take Aleve when it gets too bad and that usually works. But I don't know how far out you are from treatment. I was on prescription pain meds, at least at night, for about 4 months after rad. ended. my mouth was MUCH more painful then.
Jordan, I completely understand your frustration with how long it takes to heal but it doesn't sound to me like you are unusually far behind in terms of your recovery. Though you don't have info. about your treatm,ent in your "signature", it sounds like you are maybe 3 motnhs out of rad? I still had a lot of pain and faigue at that point and many people still need a G tube at 3 months. Though perhaps you should request a swallowing test if you feel you can't swallow anything for reasons other than pain.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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