Wow, I guess this is a venting post. I don't know I just wanted to say it amazes me how the residuals of the rad treatments continue to build so far out from tx. My jaw gets tighter and tighter but it also has gotten pretty painful to stretch. The same with my neck. Now my tongue wants to join the soreness to move club. I read everyones posts about this, especially those who had the mouth and tongue surgeries ect. and thought I understood what was coming. I guess I am just suprised and of course the farther I get away from tx the more healed I want to be. I thought I would give everyone a smile. I know everyone who has passed the point I'm at is saying "we know". Well I had another petscan yesterday and will find out Tues if we are going with the RND. Now I know why my rad dr. did not want to wait to long after treatment to do the surgery if it was necessary. I can feel the scarring ect in my neck from rad which he said will just make the surgery and recovery more difficult the longer we wait. Anyway, I just wanted to talk about some of this stuff. Not angry or frustrated just sharing about it. Thanks for listening. Lee


Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you.
Lee