Jordan, My husband 10mths out from radiation. and also had a bleed out in october from radiation necrosis in the tonsil area. Is still having difficulty talking because of the damage to his tongue from the tumor and the radiation scarring. He is very frustrated and hasn't eaten anything for a year everything by the gtube. So your not alone in this. They say it takes time but I'ts been a year and still cant talk or eat and continues to get aspiration pneumonia. He had a pet scan a month ago the radiation dr did not want him to have one because he thinks theres to many false positives. He goes by how the tongue looks and feels. The pet scan does light up in his tongue area and the other drs say they can'say for sure if its cancer but the rad dr says he thinks things look good very frustrated. My husband is in a rehab right now for a week with IV antibiotics for the lates bout from pneumonia. We also have a malnutrion issue cant get past 120 lbs. Trying a new food but have to be careful with the protein amounts, He has swollen legs now. not sur if its from malnutrion or to much protein. Its amazing what this cancer can do to the rest of your body. 5 steps forward 10 steps back. Thats what my husband says He is so scared that he is not making progress and getting stronger I think he is mentally and physically exhAusted.


BOT stage IV SCC moderately diff, invasive. radiation 2 chemos. DX 06/06. Ended radiation 8/11/06. Bleed out from tonsil area from radiation necrosis 10/27/06.