Wow- we're kinda at the same spot right now. My jaw has gotten so tight...I can barely fit 2 fingers in it. (thats my measuring technique). I thought it was from my TMJ but maybe it's from radiation. My tongue has gotten sore again, too. It's also swollen. I actually had my docs feel it again to make sure the tumor wasn't back...they didn't feel anything tho. But I'm back to slurring when i talk, which I WASN"T doing after treatment. I don't know whats up. I was done w/ tx on 3/15 & thought I'd be eating everything & back to normal by now. Boy, was I WRONG. It seems never-ending.
I had my first PET done 9 weeks out of tx and it showed some activity at the site (left side of tongue) but my docs think it's from the swelling. ) What did your first PET say & when did you get done w/ tx?
OH, what is RND??? I had IMRT 35 times, Cisplatin once & Carboplatin once-had to switch cuz Cis made my ears ring too bad. Good chatting w/ you! We're in the same boat