It is so frustrating. All cancers are cruel but this is awful. I don't think I've enjoyed a meal since last November. I was eating in Decemer & still not diagnosed but my toungue hurt so bad I count that too. I'm trying to gain weight & it's hard. I have a 2 year old girl and she hates the looks of the PEG & the whole process that goes along with it. So, I can' eat if she's around or I have to go hide. ugh. My husband does great at trying to distract her but she still says Hold me mommy. Poor lil girl as been put thru the ringer with all of this. Her & I use to do everything together. Then w. the pain & fatigue, I feel like a loser mom cuz i can't do the fun things anymore. WOW-sorry I just vented so long. Maybe I should've gotten online BEFORE I took my Ambien.
We all feel like we're not as far along as we should be. We're in a club that no one wants to belong to but at least we have each other.

SCC-tongueT3N0M0- IMRT 35times-1/07-3/07; along with one cycle of Cisplat & one cycle of Carboplat; weekly erbitux.finished all tx.3/07-supposedly gone. Recurrence 6/07. Age 31-non-smoker/social drinker. Devastated it's back.