 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Dan,
I am totally speechless and staring at this box through tear flowing eyes. I am so sorry of the news and the terrible waiting game you are experiencing. We were diagnosed just days if not hours apart (7/18 for me). I wish I knew what to say to encourage you to keep fighting; I wish there was a way I could immediately comfort you; I wish I could cure this dreaded disease; I wish there was something I could say to inspire you. You have been my beacon, my source of energy. I will pray extra hard for you and I will have everybody I know praying for you. Please hold on to your faith right now. I love you, bro!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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