Dan,

You are never wrong to want to know your results as fast as humanly possible. My ENT scheduled my PET/CT for 9 am and his appointment the same day at either 11:30 or 1:30. He always demanded the written report for my visits with him so it is doable. We never went over them, though, because his HUGE smile was enough for me and he had the report in his hand in case I wanted to see it.

Initially, I had a round of tests, MRI, chest xray, PET/CT and he called me with the results as soon as he got them. I have done much of my follow ups with the medical oncologist nurse via email and only go in if they want to see me.

At the very beginning when the medical oncologist told me wife there was no sense of "emergency", only a sense of "urgency", I knew he bit off more than he could chew and she promptly adjusted his attitude using his mother as an example of how he would have viewed it from her perspectve. She then called the oncology psychiatrist we are friends with and everything changed with the human side of the patient becoming more of a focal point.

Ed

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023