To Lily and all the other wonderful caregivers..


I sit up late at night ..not being able to sleep ,or should I say into the wee hours of the Morning..The strength,courage, determination and comapssion you all show is overwhelming and amazing. My heart aches and the tears flow for all that you go through...

While we as patients have our struggles and issues...you all have you own as well as many of ours.. I can't say which is harder nor would I even want to ..they are probably both in the same and def a situation I wish I had never been put into.

PLease know...I read this forum pretty much daily , nightly and whenever and it is a major reason I have been able to "cope". But It is also the compassion of you caregivers as much as the Pts themselves......You do it for us as well as your loved ones....You all are my caregivers too in your own ways...and for that I admire you. TO be able to get up and do what you do everyday and still come on here and be there for someone else..possibly a million miles away with a face you have never seen or a voice you have never heard......with the same compassion you give to the one you care for daily .....it is wonderful and please know that if your patient is angery or mean or anything .. I can almost be assured it isnt at you ..it is at this horrible disease that takes so so much from us ...like our ability to sleep for one!!! And you are probably the closest one to lash out to ,

and while it isnt fair ..it happens....So for all of you out there..Who deal with the hardhsips of being a caregiver ..Please look at yourself in the mirror...and try to see what I see......and I am sure you will feel somewhat a little better ..when you see that truley amazing person looking back !!

I can only hope..that if I have to go through this again ....( biospy results on thurs) My husband will be able to be 1/2 the person that all of you are...Honestly I don't have the most faith in that ..LOL...( the comapssion part throws him hahahaha) But I know that I will have all of you !


Shar