Hi Lyn,

You can read all kind of different experiences from treatment on this forum.

In my case, it went pretty well (you can check some of my past threads to get an idea).

I am 14 months out of treatment, and:

1. I have fairly good saliva, and it still seems to be improving (I did have daily Ethyol shots for this).

2. My taste is virtually 100 percent back to normal.

3. I did not lose much weight during treatment, butI hvae gained some weight recently.

4. I did have lots of sores, and other issues during treatment, but with good communication with my team these were addressed in a (reasonably) satisfactory manner during treatment.

5. The treatment was pretty mortifying at first, but it became a routine after a while - and familiarity helps fight fear.

6. I take very good care of my teeth. I always brush after eating anything, I use floss and toothpicks for my gums, I use flouride trays twice per day. I have not had any teeth problems of any kind to date.

7. After treatment, I started to use a vitamin E cream on my neck and dissection scar - my wife says she doesn't notice them. There is numbness and tightness due to the dissection (and in the case of my jaw, due to the radiation), but I started doing daily stretches (including for my jaw) during treatment (and still do to this day) which has helped immensely.

8. I lost beard hair and some hair on the back of my head and neck. I lot of this has recovered - no one seems to notice, although the new hair on thinner and finer.

9. I truly feel great, and I'm probably healthier than at any time over the past 30 years.

I hope this helps.

Best wishes,

Chris


SCC left tonsil, 2 lymph nodes, modified radical neck dissection, IMRT (both sides) completed 10/25/06, Erbitux and Cisplatin weekly, Ethyol daily