Just a quick update

It's exactly 2 weeks from surgery & 1 week out of hospital. I have been feeling better each day.

Tongue feels a little swollen but does not look it. I have hardly any pain and good movement. Practicing my speech therapy words two, no, go, key, laryngeal elevation eeee high pitch and then eeee low pitch. Everyone says I'm speaking clearly, but it sounds "to me" a little off.

My neck hurts a little from ear to ear dissection and I have good movement but my left ear is numb. Very little swelling. I go to MO for check-up Monday 6-4-07. I will then set up an appointment with my RO. Only mask fitting and getting zapped and take this for pain has been discussed. I have many questions for him.

I felt like eating yesterday but I have no teeth. My swallowing is good and tongue movement is good and not much pain now. The cancer did not get to the jaw bone thankfully. So they took 1/2 the tongue front to back. I have bottom dentures but they pulled my 4 teeth for my top plate so I need that, but they say to wait until radiation TX. as my jaw & gums might shrink.

I do have questions about what to do to save my saliva glands. Is there anything other than amofostine that I can take for xerostomia?

I hate to say I feel lucky as I have been through so much, but some of the posts I have been reading are overwhelming. I try to encourage when I can but some of them I can not find the right words or just ...no words....


DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07