Jen,

YOU are the center of your health and any decisions you want to make should not be of anyone else's concern. Most people that know me expected me to call them when I wanted to talk or tell them anything and generally everybody left me alone, unless I asked otherwise. The key to health and recovery from treatment is to minimize stress in your life. If this means barricading yourself in your bedroom, then so be it. If they try to turn your life into their agenda, tune it out.

This is one time in life that I learned I could communicate proactively and everybody listened! I did not want a lot of extra people hanging out and I tried hard to still fix dinner every night for the family. Unfortunately, for them, when the taste buds went, we all learned (quickly) that I cook from taste, not recipe!

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023