Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | I'm finding the first half of the plan has been the hardest for me (to almost week five) but I'm only having radiation. This was esp true because the amifostine and I became allergic to one anthother about that time, so I just come in and lay down on the table without the preliminaries.
Also, I will have two stages of "boost" under my rad plan (I'm in one now and the next starts next [my last] week) and these seem to be have a lesser overall effect on me, altho I might just be becoming adjusted to the changes.
Once I got going on my PEG and used to it, it became "normal" and less of a hassle.
I find I want to gag everytime I try to brush my teeth, so I do that first and get it out of the way without losing food or meds.
I have continued to sip water and take most meds by mouth in order to hopefully make the return to real swallowing less of an ordeal.
Pete
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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