Thanks for the replies..... Prior to discharge I faxed the doctor a letter of things I would like in place for my Moms care at home: I asked for a script for the feeding pump (slow drip). It worked well in the hospital vs. the gravity seringe method. I also asked for a visiting nurse for the first few weeks. The doctor approved and the nurse went to set it up and she denied both of them. I also asked for a referral to a psychologist which I beleive she also refused. This of course was very frustrating. But due to your story with your dad and how well he felt with the iv fluids I will revisit this topic with her today. As far as depression goes.....it is so hard to determine if it is setting in when we are 600 miles apart. She also told me that her 100 mg of fentanyl expired on saturday and they (her and her husband) did not realize it until yesterday. That obviously may have alot to do with her feeling crummier than ever. Oh how frustrating it is to have her so sick and be so far apart. All of the family is in NY. Her husband is the only one in TX with her. I can't be there more since I have 2 small kids and a husband that works 70 hours a week. Very very frustrating! Tami
Tami Mom has Bot scc stage T1/N1= stage 3 dx 6/27/05 treatment IMRT & chemo (docetaxel, cisplatin, 5FU) ended treatment 8/22/05 Cancer free as of Feb 2006
|