Tami,

I know many at this point in treatment that have vowed to not go through any more treatment for a recurrence. As a matter of fact, many people (myself included) were adamant that they would never go through radiation. Yet, when you hear a doctor lay it on the line and tell you the alternatives, staying on this side of the grass suddenly becomes your driving force in life.

I am glad your mom went to Wal Mart. I know she shouldn't be driving with the narcotics but she is taking a step to gain some control in her life. This is a good sign.

I had some issues from the end of treatment and even still experience some of it. When I stand up or I use my muscles to urinate, I see a white flash. I used to pass out at this point. (Excuse me for being so graphically gross.) The doctors did the ultrasound on both carotid arteries and there was no blockage.

I also had a bone scan only to find out I had developed arthritis in my hip and shoulder and had 2 broken ribs from falling when I passed out or the car wreck...I guess that's another couple of stories for later.

I know this must be terribly rough to be so far away and only get the glimpses of the extremes. Hang in there and work towards getting your mother back in control of her life. She will benefit immensely and the side-effect is that you will rest easier.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023