Thanks everyone for the support. I really don't know if any mistakes were made at this point or not, but just hope that our outcome is remission. Then I can get it out of my mind. In the meantime, as you all have pointed out, I will try not to feel intimidated in checking on everything that is being done. It's funny though, on the chemo side of the cancer center, they are always checking identity by asking name and birthdate constantly, whereas on the radiation side, they do not follow that protocol.
Amy, the RO said my husband will have to wait until treatment is over and he has some more strength before physical therapy can take place, but pointed out that it can't wait too long, stating that if you wait six months, it will be too late to get the function back. He did say however, that it may not come back. Currently, my husband hasn't complained of pain in his shoulder, but he cannot raise his left arm much at all. I guess this issue will have to be placed at the bottom of our priority list, as he will probably still be facing surgery for neck dissection after treatment is over. I'll let you know how things go with it. Let me know if your doctors say anything different than what we've been told.
Thanks.
Michele


Michele, caregiver to husband, Jesse, SCC diagnosed 1/5/06 unknown primary, lf neck mass >6 cm. Chemo (Cisplatin 2x; Carboplatin & Taxol 2x) & XRT radiation 39X ending 4/4/06. Rad neck dissection 8.5 hrs 4/13/06. 30 HBO treatments Fall 2006.