Hi Michele,

Please don't feel intimidated about checking and double checking everything that you can think of. My attitude is that you've really got to look out for yourselves because, in my opinion, hospitals and doctors are overwhelmed. I always questioned everything. I may have developed a reputation for being difficult, but my intentions were in the right place. Heck, even with the best diligence I could muster, mistakes were still made. A data input error caused my mom to receive too much chemo on several ocassions. In fact, just yesterday, my mom went in for a procedure and within her chart they had a long list of meds. The only thing is that they weren't her meds. Upon looking at the chart, I pointed out the patient's name on the med list - it was another patient. These little mistakes, as you've found out, can potentially create a butt load of trouble, so don't be intimidated at all. You're Jesse's advocate and have every right to look out for his well being.

Best regards,
Dave


Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.