Hi all. Marica, I like the point you make about letting them know that we are not just a number on a folder. When they know you are not just going with the flow, but paying close attention to the details, perhaps there is just a smidge more conscientiousness on their part. We just got back from our appointment and I did ask to speak to the RO. He was very thorough in explaining what went on, admitting that there was a mix-up in that the CT scan should have been scheduled by his staff on Monday but assuring us that the treatment plan was not compromised in any way. So I feel better, although not 100% confident.

Unrelated to the above, but has anyone had any experience with the nerve in the shoulder being damaged from the cancer? I noticed in the last few days that my husband's left shoulder (where the mass is) is dropped significantly from the level of his right shoulder and there seems to be a indentation on top of his shouler. The RO said that the cancer itself caused it, not the radiation, and that the nerves may or may not come back and that once he gets through the treatment, physical therapy will be scheduled to determine if there is permanent damage.

Thanks for the input.

Michele


Michele, caregiver to husband, Jesse, SCC diagnosed 1/5/06 unknown primary, lf neck mass >6 cm. Chemo (Cisplatin 2x; Carboplatin & Taxol 2x) & XRT radiation 39X ending 4/4/06. Rad neck dissection 8.5 hrs 4/13/06. 30 HBO treatments Fall 2006.