I just completed the MD Anderson protocol at MD Anderson. The chemo is given in very small doses and the side effects were mild. The real problem is the burned mouth from the twice a day radiation. I grew intolerant of food a couple of weeks ago and got the PEG. I find it quite easy to feed myself with the PEG. I cannot say how long I will have it. My tumor, at the base of the tongue was too large to allow me an option of surgery. The docs seem to think that my nodes are shrunken or non existent and that the tumor itself is quite diminished as well. I will have a CT scan in Oct. to determine if surgery is still needed. Although my mouth is burned, now that I don't use it to eat, I feel very little pain, and, with the PEG, at least am able to get my nutrition.
I hope that this was helpful.