You'll find there will be lots of ups & downs. It's hard for us to imagine what they have lost. Some of it returns but it's never the same. Foods that Mike loved no longer taste good or are the things he can't eat (bread, potato, etc). Another frustration is that he can eat something just fine one time and the next he can't. It's dependent upon so many different things and makes it harder to figure out what to eat. He's finally pretty much settled on certain foods and rarely goes outside those bounds. I used to feel very guilty when I was eating something he loved but could no longer eat, have finally gotten over that but have also curbed a lot of my eating (nto a bad thing since I am down over 40# and back into size 6 clothes <g>).

Let him vent when necessary and just don't take it personally. Gently remind him of what he couldn't do before but can now. Then give him a hug and tell him you love him.


Our Story: http://hncancer.com
Husband: Mike, age 62
SCC soft palate, Stage IVa, [T2 N2c M0]
Diagnosed 4/16/01, Palatectomy, Partial Pharyngectomy, Comprehensive
Radical Left Neck Dissection 7/25/01, 30 Radiation treatments 9/10/01,
Recurrent SCC Right Lymph Nodes 11/6/03, starting IMRT 12/29/03 & Cisplatin 12/30/03