Hi Walt
Robin had all Pats side effects by day nine which came as a horrible shock to both of us.He virtually deteriorated over night.Our oncologist decided to throw everything at him at once ,with fentanyl patches ,oromorph ,nystatin ,lignocaine mouth wash and on and on.At day 15 Rob hadnt eaten anything for two weeks and was not drinking at all.His weight went from 88kgs down to 78 kgs ,and i was very scared for him.The point of my post is that today is day 24 and i have to say Rob has improved enormously.He is being fed by tube his weight has stabilised ,his mouth has got no worse ,and his skin burns are holding up.We are thrilled .I seriously expected to be at my wits end this week with the phase two intensive treatments started but fingers crossed he is good (As good as you can be with a mouth full of thrush and ulcers ,and skin like you fell asleep on a sunbed.)Robs routine is three hourly feeds,and in between he sleeps.To me this is a blessing and i thank god every day for his continued good fortune.Of course we had no chemotherapy to contend with as doctors in the UK dont seem to use chemotherapy for Robs type of cancer unless it is inoperable.
My thoughts are with you both every day and i watch your progress with much love amd interest

Love and all the best liz in the UK