#22566 03-15-2007 10:59 AM | Joined: Mar 2007 Posts: 18 Member | OP Member Joined: Mar 2007 Posts: 18 | I'm very thankful for the responses, suggestions and encouragement. What many of you have been saying coincides with what I've read and heard from others. So, many many heartfelt thanks to you from my wife and I.
The dieticiam has suggested Jevity 1.5 at 4.5 cans per day. This would give Pat about 1700 calories per day. He also stressed lots of water.
I've been cleaning her PEG tube twice each day using about 60 cc of water. This is giving me good practice and I'm pretty comfortable with this process. Pat doesn't want any part of it as is more than willing to let me do this. I've been changing the dressing each day since she had it installed last Thursday. Yesterday I was able to get nurse in the RO's offic eto get us a stopcock valve. This really helps and has eliminated the small amount of leakage she had been having. There's still a little drainage from the tube site itself but this is alleviated with some drain sponges and some tape. Pat is still having a lot of discomfort, bloating and generally distended stomach. She's been a little constipated but has taken milk of magnesia each day. Anyone experience this? Any suggestions? Once agin, my thanks to all. You've been a blessingto us.
------------ CG to my wife Pat. SCC base of tongue. Dx 2/07 - T2N3bM0. Single lymph node dissection 2/07. Tx started 3/07. Expecting 8 rounds of Erbitux and 30 to 35 rounds IMRT radiation when complete. Trusting the Lord no matter what.
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My sweetheart has BOT, SCC, Stage 4a
| walt5615 | 03-14-2007 11:44 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| Kyle 51 | 03-15-2007 12:54 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| William Dozier | 03-15-2007 08:37 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| davidcpa | 03-15-2007 09:15 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| J Malone | 03-15-2007 09:29 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| ccw | 03-15-2007 12:09 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| walt5615 | 03-15-2007 05:59 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| blc6571 | 03-16-2007 06:03 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| davidcpa | 03-16-2007 06:10 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| blc6571 | 03-16-2007 08:05 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| JAM | 03-16-2007 09:47 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| JAM | 03-16-2007 10:00 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| Joanna | 03-17-2007 02:42 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| Cookey | 03-17-2007 07:26 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| davidcpa | 03-17-2007 10:00 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| Anne-Marie | 03-17-2007 05:45 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| HiloGirl | 03-18-2007 05:25 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| davidcpa | 03-18-2007 10:21 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| Anne-Marie | 03-18-2007 10:17 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| walt5615 | 03-19-2007 01:37 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| JAM | 03-19-2007 07:30 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| Brian Hill | 03-19-2007 08:19 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| JAM | 03-19-2007 10:33 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| HiloGirl | 03-20-2007 03:59 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| davidcpa | 03-20-2007 08:31 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| jm-cm | 03-22-2007 10:59 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| walt5615 | 03-23-2007 09:26 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| JAM | 03-23-2007 11:23 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| lee33 | 03-24-2007 01:30 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| walt5615 | 04-01-2007 02:07 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| davidcpa | 04-02-2007 09:33 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| Talbill | 04-02-2007 08:14 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| JAM | 04-02-2007 08:30 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| walt5615 | 04-03-2007 01:20 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| Stoj | 04-03-2007 10:46 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| Cookey | 04-03-2007 11:30 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| JAM | 04-03-2007 08:33 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| walt5615 | 04-10-2007 12:12 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| JAM | 04-10-2007 01:05 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| walt5615 | 04-10-2007 01:25 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| JAM | 04-10-2007 02:00 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| JAM | 04-10-2007 02:07 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| walt5615 | 04-20-2007 06:56 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| JoAnne1981 | 04-20-2007 08:59 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| walt5615 | 04-20-2007 11:54 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| walt5615 | 04-28-2007 05:47 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| walt5615 | 04-29-2007 12:36 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| JoAnne1981 | 04-29-2007 12:58 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| JAM | 04-29-2007 07:09 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| walt5615 | 05-18-2007 08:19 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| JoAnne1981 | 05-18-2007 10:40 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| JAM | 05-18-2007 10:45 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| Cookey | 05-19-2007 09:04 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| walt5615 | 06-02-2007 03:19 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| davidcpa | 06-02-2007 10:31 AM |
Re: My sweetheart has BOT, SCC, Stage 4a
| walt5615 | 06-02-2007 11:49 PM |
Re: My sweetheart has BOT, SCC, Stage 4a
| davidcpa | 06-03-2007 10:34 AM | |
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