Platinum Member (300+ posts) Joined: Nov 2005 Posts: 306 | Grace - I'm sorry you and your husband and family are going through this. It is confusing and terrifying and overwhelming. To whom do we listen? Which of these docs knows the right answer?? IS there a right answer??
Find the docs who can say: "We have treated dozens of oral cancer patients with great success." Don't settle for a cancer team that doesn't specialize in oral cancers. This cancer isn't like many other forms and needs to be treated by experienced specialists. Your doc can refer you to them, but you must ask.
Get more than ONE opinion about what is wrong and what should be done about it. This cancer is aggressive and needs to be hit with all the best weapons available. Don't let your docs be too conservative in their treatment plan - that kind of planning too often comes back to haunt you...
Check in here often. We can often help with encouragement and the benefits of our own experiences. You aren't alone. Tom J
SCC BOT, mets to neck, T4. From 3/03: 10wks daily multi-drug chemo, Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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