Thank you all so much!!! I cannot believe how wonderful this site is and I wish to God I had found it 5 months ago!
A little more info, Jeff is scheduled for 33 radiation treatments. We will talk to the Dr after his treatment tomorrow and see what the tumor board said last week. Our understanding is that chemo is not really effective for treatment of this condition. Is that incorrect??? He ended up with a feeding tube that was way to tight and had to have it adjusted today after just having it placed on Friday. It was so tight he couldn't even take a deep breath! He is already feeling better yet very sore from having the dr pull and tug on it. He says that even though he has only had two treatments after todays he has develeped a strange taste in his mouth and he feels like the back of his tongue has a strange tingling sensation. Isn't it to early for that??? We are only 2 treatments in?????? He also said he has a weird metallic taste in his mouth. I never doubt him when he tell's me these kinds of things because he is a true Marine and never complains about pain or discomfort, so when he does I know it is real.
Thanks again to all you wonderful people!!!
Grace