Food probably does sound awful to him ... being that sick and in that much pain, food is just a pain in the neck. Literally, in this case. But it needs to be dealt with. This is where the tube can be handy, annoying as it may be for him to use (and frustrating, if he hates feeling reliant on anything). I would never have kept up any calorie count without my feeding tube, and I never did reach the goals Christine suggests, though she's absolutely right that they're essential. And mood is affected by poor nutrition, which just compounds the problem. (Ask my husband, poor guy.)

Sounds like you're as on top of things as you can be, and he's lucky to have you as a caregiver. ((hugs))


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery