Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Being the spouse and caregiver can be difficult to juggle. On another post you mentioned family is far but you have lined up some helpers? As rads continue they get progressively more difficult. Most people genuinely want to help and yes, it does take a village. Anyone who offers your husband help should be added to a list of names with their full contact info. Tell the generous helpers when the time comes you will let them know what they can do to help. Theres all kinds of little things that can be a big help while someone is going thru rads. Picking up prescriptions, walking the dog, cutting the grass, taking out the garbage, grocery shopping, laundry, cooking a nice dinner are all things, driving your husband to and from his treatments are all things another person can help with and will help to make this easier on you both.
At your husbands treatment center you should ask what other services are available to patients. There may be counseling, nutrition sessions, patient/survivor groups, etc. There may even be financial assistance available for medical bills but often this is not offered unless someone asks about it. Theres far too many medical things doctors need to cover often forgetting to mention other things their facility offers to help patients. There may also be a wall of brochures available and the facilities website should mention other helpful things available.
The American Cancer Society (ACS) offers a patient driving program where cancer survivors and caregivers will drive cancer patients to and from their appointments and treatments. This could be a nice break for you with being the only caregiver. Its takes a while to get it set up so if you are interested call 24/7 the ACS. Ive used it myself and couldnt believe the generosity of someone I never met driving me 45 minutes each way for my treatments. I became am a volunteer driver myself and helped other cancer patients in my area.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |