You’ve had good advise so far! As mentioned, you can ask for a fine needle aspirational biopsy under ultra sound guidance at a CCC or CC, usually done by a pathologist was my experience, although at this point, I’m not sure if any would agree, but it’s minimaly invasive. Usually that’s done first, like mine, which showed positivity, and then a triple scope under sedation found my primary. None are 100% accurate, but I’m sure fairly close between them all. As my cancer was found in the tonsils, if not, it wouid have been an unknown primary since cancer was proven in the lymlh node. A primary can be difficult to find in the tonsil crypts or die off at the primary when it metastasizes to the lymph nodes, taking all the nutrients with it, but maybe a small residual of dead cells are left behind, but I’m not completely sure though. Sometimes it’s the other way around that cancer is found in the primary, and not the lymph nodes.

It’s correct that it’s not cancer until proven otherwise, and that’s by biopsy. There are so many other oral conditions it can be other than cancer.

Good luck!


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs