Thank you, Amy and Joanna! I sure appreciate your responses. Joanna, I'm curious about your chemo suggestion. While I want to use all the ammunition at my disposal, I've read some of the studies and there is no existing protocol that I can find in regard to this cancer. Either there was no response or negative response, but truthfully, there hasn't been much to go on with this. It was only first named in the past 20 years or less and instead of hundreds or thousands in case studies, there are only double digits. But I'm glad you mentioned it so I can ask the radiation therapist on Thursday.
As to my children and hugs...we have quite a bit of that going on! My Mom is usually the caregiver though it means she and Dad virtually move in from their home out of state. I'm fairly self-sufficient with my own care now, but when she is here she keeps the house clean, the family fed, and the laundry done. We are part of a terrific church that has been extremely supportive with providing meals, housework (even remodeling work and repairs), and things I wouldn't have even thought of but they have and they've been very loving and generous.
My two sisters each took leaves of absence from their jobs out of state to care for me 24/7 for the three weeks I was in the hospital. They are my angels of mercy!
I really do have great support...and now I have you, who can speak to the mysteries I stumble into on this journey. The one thing I've been missing is somebody who can remotely identify! Thanks, Ruth
Ruth E. Moran dx minor salivary gland adenocarcinoma 4/99, resection 5/99; rec 1 lymph 2 cm 7/03, mod. rad. neck resec. 7/03; rec primary 10/05, resec, pec flap, PEG tube, IMRT 2&3/06, Osteonecrosis right mandible removed 1/08 metastatic lung cancer, 3/08 clinical trial MD Anderson
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