Good Lord, Ruth! We will have to take a deep breath to think about how to respond to your experience. Since I am a caregiver rather than a patient, I can't address the medical issues. But I can suggest to you that your Mom's issues need to be her own[hard as that is- she is caught in the "parents aren't supposed to outlive their children" mode and is scared to death at what has happened to you] and your husband needs a whole lot of support from whoever else is available-family and maybe us-but you need to conserve your energy to fight for yourself and you can't support him all the time. I hope someone else is there to give your kids a million hugs a day and let them know they are gonna be o.k. while you are waging war against this disease. WoW, you sound like one really tough broad [it takes one to know one]And I think you will get some help here. Amy