Dear Support Members,
Today (Tuesday) I had my 2nd rad treatment on my throat area, no horsness, difficulty swallowing or pain as of yet. What I have noticed is that what little saliva that I had after the last rad treatments is already being compromised. Now I have to constantly sip water to keep my mouth slightly moist even during the day when before it wasn't so bad. I am asking if anybody has had experience with the drugs Pilocarpine (Salagen) or Cevimeline (Evovac) that stimulate the nerves that control the saliva glands. I have asked my Doctor before and he said he really didn't like it because it just helped in increasing the thick saliva in which the rad treatments really effects the thin saliva glands. The side effects didn't look to promising either! Sucking on hard candy is not so bad but makes my lips sticky from the sugar or other ingredients. Sort of picky aren't I!


5/31/16 Partial Glossectomy
Right neck dissection
22 teeth extracted
Six weeks of radiation Ended 8/19/16
2/8/17 Biopsy of epiglottis-cancerous
35 radiation treatments to the throat, End 11/17/17
8/23/19 Tongue reconstruction, left radical neck dissection