 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | [quote=Anne-Marie]PS to my above message: How about a raffle item at one of the Awareness Walks? If only 24 people bought one $25 raffle ticket, that would be $600 and would pay for the VitaMix? Or set up something where we could donate $ to a fund to pay for a cancer survivor's VitaMix? I would certainly donate to that rather than to an ice bucket challenge. I cringe when I see somebody getting ice and water poured over their heads. In fact, if I saw someone I liked about to undergo the ice bucket torture, I would donate for them NOT to get the ice bucket torture! [/quote]
I was thinking it would be awesome to do some type of raffle for one at the walks and then have a way to award it to one of the survivors at the walk. It really is great to have survivors and some have to travel to the walks and it can cost more than the money they raise.
The Ice Bucket Challenge was started by professional athletes. Their bodies are in much better shape than any of us. After neck rads, especially with things like the autonomic nervous system and baroreceptors compromised, it could be instant death. My son challenged me and I'm getting some packing peanuts and going to do that. It saves me $90 and honors my many ALS friends, many of which have lost their lives as well as my step-sister.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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