Dear JMTLC, My John hates the "after effect" of his 2Cal nutrient through the Peg. He burps alot too,[but he also refuses to put the liquid Pepsid thru the tube as instructed.] If you feel that your John isn't getting enough liquid, start getting him to take Gatoraide either orally or thru the Peg to keep him from getting dehydrated. This is a serious problem. We had a crisis not long ago because John , altho drinking lots of water, was not getting the electrolytes he needed.
Gatoraide [or Pedialite} helps a bunch. This is really a frustrating time for him and you. It's hard to be this sick and it's hard to see someone you love suffer. I must say I envy your training. I have felt so over my head and out of my element since our journey with this illness began. Hang in there! Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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