Thank you so much for your kind replies. There is such a store of compassion and humanity here. I am incredibly grateful.

I had a counselling session yesterday with Macmillan (the UK cancer charity, as I was diagnosed with PTSD from all this). We talked about this new lump.

I feel that, on balance, it's quite likely to be simply scar tissue. Fortunately, or UNfortunately, I am a person who needs "evidence" - facts and figures. This is a blessing and a curse, and I know it can make my thinking rather rigid and times. Sometimes it stops me from feeling as hopeful as I could feel.

Although I don't yet have the "evidence" my mind craves, in the form of the biopsy results, I am FORCING myself to at least be realistic, if not 'hopeful', it is highly likely this will not be a recurrence of the cancer. It is more likely, realistically, to be scar tissue.

So that's my survival plan for the next couple of weeks smile

Main thing is, I am feeling generally a little more well, a little more energy, more confidence - and being back at work has helped me with these things. It has stopped me brooding at home, dwelling on myself all the time, although I think cancer makes you a bit like that at times....

In my job, I have 8 hours each day where I *must* think about 12 other people, and the other nurses and support workers I work with. Having the thinking pointing outwards instead of inwards is VERY healthy!


Mar 99 white patch tongue
Dec 11 white patch changed shape. biopsy neg
Sep 13 white patch ulcerated. Biopsy
Nov 13 diag Tongue SCC T2N2BM0 poorly Differ.
Dec 13 Hemigloss. neck dissect.Trach.Caldwell Luc (suspect cysts inside face, neg), teeth out. forearm flap, abdo graft
Feb 14 PEG tube
Feb/Mar 14. 30 x radio 60gy Grade 3 Mucositis, burns, hair loss, very ill. Nerve damage ear neck shoulder
Jun 14 *now* PEG out. Have lost 98 lbs in 1 yr. Anorexia. Dysphagia, liquids only. Dysphasia. Fatigue.