"OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) Joined: Nov 2009 Posts: 644 Likes: 1 | Hi Estelle. I'm so sorry that you are in one of those awful biopsy limbos. It must be a shock after what you went through during treatment. I'm sure we can all relate to your feelings so don't feel bad about that. Where else can you vent to people who understand? What Tammy said about trying to stop the downward spiral of thoughts is something I was advised to do too. Just tell the thoughts kindly to go away after acknowledging them. I've been reading about ways of coping with this sort of stress since my 4th cancer diagnosis. When I was waiting many weeks over Christmas for my latest biopsy I contracted an awful gastro-enteritis that continued for a week. Looking back I think the stress of not knowing made me susceptible to the bug and less able to throw it off once I got it. Not a very scientific observation but it's how I feel about that waiting period. I've also had lots of biopsies where the results were good:)
Xerostomia is much worse than I thought too. I don't have it all the time but right now with a cold and my nose blocked I can barely swallow unless I sip water constantly which then means frequent trips to the loo:)
Wishing you well.
1996, ovarian cancer surgery + cisplatin and taxol. September, 2007, SCC of left lateral tongue. Excision. October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT. February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
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