Well, I was sent for an ultrasound on what we all thought was a "clip" in my neck leftover from the neck dissection: a small, hard, mobile lump in the scar.

It wasn't a clip.

A fine needle aspiration biopsy was taken.

There is a lymph node "up" in the other (non-cancer) side of my neck. 'Within normal' - the chap said, but then why did he send a 'normal' picture especially to my consultant.

I have to wait 7 - 10 days for the biopsy results.

I know, I know "think positive" etc etc etc....

But the other half of me is thinking about my tumour being poorly differentiated, aggressive, AND in the nodes....

There's no way to second-guess this. Either it is a recurrence, or it isn't.

I'd just hoped I would have longer than 4 months without it coming back.

It's going to be a very long couple of weeks.

In other news, I now have a more reliable prognosis on my TERRIBLY BAD xerostomia. My right submandibular salivary glad ISN'T THERE, presumably removed during the neck dissection. My left parotid and submandibular glands are shrunk. Today's ultrasound showed this. I suppose I can't now expect much of an improvement on this unexpectedly HORRIBLE condition.

Sorry for the negative vibes. I'm still having counselling for PTSD from parts of what's happened; I try to be 'positive' and cheerful for everyone, but sometimes bits of the darkness leak out. Block me if it's a problem x x x thank you for reading my post x x x


Mar 99 white patch tongue
Dec 11 white patch changed shape. biopsy neg
Sep 13 white patch ulcerated. Biopsy
Nov 13 diag Tongue SCC T2N2BM0 poorly Differ.
Dec 13 Hemigloss. neck dissect.Trach.Caldwell Luc (suspect cysts inside face, neg), teeth out. forearm flap, abdo graft
Feb 14 PEG tube
Feb/Mar 14. 30 x radio 60gy Grade 3 Mucositis, burns, hair loss, very ill. Nerve damage ear neck shoulder
Jun 14 *now* PEG out. Have lost 98 lbs in 1 yr. Anorexia. Dysphagia, liquids only. Dysphasia. Fatigue.